OpenSNP, a fourteen -year -old warehouse for genetic records, will close and wipe all its data at the end of April.
According to Bioinformatics Researcher Bastian Greshake Tzovaras, the disintegration of the genetic test, one of the founders of the project, and the potential arming of genetic data by authoritarian regimes.
“We think that the risk/benefit of having such a data collection has changed against the current authoritarian governments, but of course, 23 and, of course, the serpinti about the ownership of data.” He said. Record.
23Andme Filed for bankruptcy protection Last week, the court’s bankruptcy process, including genetic data obtained from the biological examples presented by customers – will be left to the bankruptcy process.
Some may not be limited to any confidentiality commitment made by the new owner 23Andme if these genetic data are sold to another company. However, the consumer keeper of America on Monday FTC written [PDF] For the authorities who control the bankruptcy transactions, the promises of confidentiality made by 23andme should continue to be honored by those who resulted in genetic data.
“Any sales or transfer of bankruptcy, including the personal information and biological examples of 23andme users’ personal information and biological examples of the regulator, will be subject to the representation of users about both privacy and data safety, and will be subject to representations that users provide sensitive data to the company.”
“Furthermore, as promised by 23andme, any buyer should agree to be adhered to and to adhere to the laws in force, including the changes he made in these policies.”
At the end of last weekends, California Law is in the light of privacy rights in accordance with California Chief Public Prosecutor Rob Bonda reminded “California people are thinking of calling their rights and directing 23Andme to delete their data and destroy any example of the genetic materials held by the company.”
Now …
OpenSNP – where SNP represented genetic variations known as the only nucleotide polymorphisms – began to work in October 2011.
Project Founders Bastian Greshake Tzovaras, Philipp Bayer and Helge Rausch launched an invasion of non -profit. Democratization of usability Hoping that genetic data will be strengthened and the public will benefit.
As the site explains, “it allows you to install your raw genotyping or exom data from 23Andme, Decodeme or Familyreledna to make it available for everyone”. Scientists can then enter the database as part of their work. Dot-Org, “Easily find people with the variation you are interested in.” “Since files can be grouped with variations for certain phenotypes, it is easy to get available data sets for association studies.”
Thus, people prefer to supply their genetic data to ideally use for scientific purposes. “You declare that you understand the possible risks and side effects that may arise by providing your genetic and medical information on this platform.” This is a kind of kind that you may not want to fall into the wrong hands in the future, although it is freely present today.
The source code of the project is also clearly available Here.
“From the very beginning, the Arzum to OpenSNP not only follows a practical data tank angle, but also to embodiment a more radical political dimension: genetic data can be provided to the drugs that can be accessible to the commercial silos of genetic tester ‘(DTC) genetic test companies and to provide access to the drugs that can only be accessible to WebP. article.
Tzovaras hoped that access to genetic data would improve human health and medicine, but now he thinks that longing is naive. Today’s “gloomy” and more “sober” view, food safety and stable housing access will have a more significant effect than finding genetic answers to common diseases such as food and housing insecurity.
Tzovaras stated that the project is pleased with what the project has achieved, such as providing data to support academic projects. A reproduction work This revealed problems with previous chronic fatigue syndrome research.
However, with the death of 23Andme, Tzovaras believes that most people will see less data because most people obtain their genetic files through the company. More importantly, he is worried about the potential abuse of genetic data than 14 years ago.
Law enforcement officers, directly to the consumer genetic data and genealogy platforms have become enthusiastic users. 2019 Purchase Gealogy Site Gedmatch Firm Verogen – Tzovaras advocates the emergence of judicial services DNA phenotyping Revitalization of fake information removed along the lines of the lines craniometry. And he argues that this reverse shift is united with political changes in the United States and elsewhere.
“There is an increase in extreme right and other authoritarian governments around the world.” “While breaking free and open societies, they are also dedicated to change scientific thought and reasoning among disciplines with false science.”
Indicates that the US government replaces reliable sources “Crackpot theories of ruling people“And Tzovaras, which is the corporate lane mining and pollution of digital joints, said Sunset Opennp time.
OpenSNP will be closed on April 30, 2025 and all the data stored there will be deleted. ®
